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Darlene Yurkins

Fundraising for Emily Y's Freedom Concepts Tandem

Emily loves to move. With Sanfilippo Syndrome being degenerative, progressing as she gets older, keeping her active and engaged is important. She loves being outside, and used to just go take walks around the block with us. Now 14, she's been struggling with her mobility. She has trouble coordinating her movements and maintaining stamina. Having the tandem bike can go a long way towards her staying active and engaged safely, with one of her adults assisting the ride. 

Emily loves to move. With Sanfilippo Syndrome being degenerative, progressing as she gets older, keeping her active and engaged is important. She loves being outside, and used to just go take walks around the block with us. Now 14, she's been struggling with her mobility. She has trouble coordinating her movements and maintaining stamina. Having the tandem bike can go a long way towards her staying active and engaged safely, with one of her adults assisting the ride.

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Fundraising Progress
$100 raised of $6,500 goal
 

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