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Alondra Ortega

Fundraising for Antonio B's Freedom Concepts Tandem

My son is visually impaired, he’s been loosing the vision at the age of 5 ,he would love to ride a bike and feel the air in his face. 

My son is visually impaired, he’s been loosing the vision at the age of 5 ,he would love to ride a bike and feel the air in his face.

FEB
18

My son at the age of 5 he was loosing his vision ,Doctors said that’s he has red cone dystrophy, and now they give me the genetic test results and told me he has the Batten disease, also called neuronal ceroid lipofuscinosis (NCL), is a severe and heritable disease that causes seizures, loss of vision, and a continual diminishment of motor and cognitive abilities. The disease is progressive and reduces life expectancy. Treatments available are primarily palliative, intended to improve patients’ quality of life and slow the worsening of symptoms.

He’s a lovely kid💕

Comments

Fundraising Progress
$105 raised of $5,950 goal
 

Recent Donations

$100.00
1. Jill Griffin
Good Luck! Can’t wait to see you riding on a bike!
$5.00
2. Alondra Ortega