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Jennifer Smith

Fundraising for Marley S's Freedom Concepts Tandem

Most kids see a bike and think of speed. Speed is great, but for Marley, an adapted bike represents something much bigger: freedom of movement. It’s the difference between being a spectator in her own neighborhood and finally being the one pedaling through it.

In October 2025, Marley tried a Freedom Concepts tandem bike with her younger brother. For the first time, she wasn't just a passenger—she was part of the power. The look of pure joy on her face was priceless.

Marley lives with ACER3-related Leukoencephalopathy, an ultra-rare neurological condition that constantly challenges her balance and muscle control. It makes a "normal" bike impossible to ride, but Marley isn't "normal"—she’s a warrior with the biggest smile you’ve ever seen.

Winning this adapted bike would mean:
✅ Inclusion: Finally joining her brother on family bike rides instead of watching from the side of the road.
✅ Strength: "Stealth therapy" to build the muscle strength and coordination her condition tries to take away.
✅ Joy: That "look at me go!" moment where the wind hits her face and the wheelchair stays behind.

We want to give her a world where her diagnosis doesn't define her boundaries. Please help us get Marley on wheels that let her fly!

Most kids see a bike and think of speed. For Marley, an adapted bike means freedom of movement. Living with ultra-rare ACER3-related Leukoencephalopathy, a standard bike is impossible. But Marley is a warrior who deserves to move! Winning this bike means: ? Inclusion: Riding with her brother ? Strength: "Stealth therapy" for her muscles. ? Joy: Feeling the wind on her face that "look at me go" moment that we saw when she she tried the FC tandem bike at an adapted cycling event.

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Fundraising Progress
$260 raised of $6,500 goal
 

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