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Elise Van De North

Fundraising for Cayden V's Freedom Concepts Discovery Series

Joubert Syndrome is a rare neurological disorder that affects balance, coordination, muscle tone, and development. For my child, that means things other kids do without thinking — running, climbing, riding a bike — take extraordinary effort, therapy, and courage. An adaptive bike isn’t just a bike for us. It’s freedom. It’s independence. It’s inclusion. It’s the chance to ride alongside siblings and friends instead of watching from the sidelines. 

Joubert Syndrome is a rare neurological disorder that affects balance, coordination, muscle tone, and development. For my child, that means things other kids do without thinking — running, climbing, riding a bike — take extraordinary effort, therapy, and courage. An adaptive bike isn’t just a bike for us. It’s freedom. It’s independence. It’s inclusion. It’s the chance to ride alongside siblings and friends instead of watching from the sidelines.

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