
Arianna is unable to ride a bicycle on her own due to her physical regression and seizures, but she loves to ride. Maintaining her physical abilities and independence as much as possible is a must due to her disease causing her to regress as she ages.
Arianna is unable to ride a bicycle on her own due to her physical regression and seizures, but she loves to ride. Maintaining her physical abilities and independence as much as possible is a must due to her disease causing her to regress as she ages.
NaNa has a rare genetic disease called CLN2 Late Infantile Batten Disease. She grew up like the average child until she was 3 and began having seizures. The neurologist diagnosed her with Epilepsy due to an abnormal EEG. When she turned 4 years old she began walking differently and we began the process of seeing specialists to find out what was going on. One morning when I went to get Arianna out of bed for the day, she was unable to move, overnight she had lost the ability to walk on her own! It was heartbreaking for her and terrifying for her siblings. We strive every day to make it the best day possible because you never know when your last day will be! This bicycle would help NaNa feel independent while being safe and enjoying great family bike rides!
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