Jaley was diagnosed with zellweger syndrome at 15 months. We were told to take her home and enjoy her. Zellweger syndrome affects 1 in 50,000 with half of the babies born with it not seeing their first birthday. Jaley will be 4 soon. She has moderate to severe hearing loss, is non verbal and not mobile. She loves being outside and loves her adaptive trike at school. It would be really nice to have one at home for her
Jaley was diagnosed with zellweger syndrome at 15 months. We were told to take her home and enjoy her. Zellweger syndrome affects 1 in 50,000 with half of the babies born with it not seeing their first birthday. Jaley will be 4 soon. She has moderate to severe hearing loss, is non verbal and not mobile. She loves being outside and loves her adaptive trike at school. It would be really nice to have one at home for her
Comments