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Holly Lefevers

Fundraising for Jailynn L's Freedom Concepts Tandem

Jailynn is a sweet 13 year old girl that has cerebral palsy, autism, epilepsy and several other challenges due to having half of her brain removed at age 2 (a right hemispheretomy) She is very limited on activities and exercises that she is physically able to due. She is unable to jump or climb. Riding an adaptive bike is something she enjoys and can actually do. She frequently ask for a bike ride but is unable to take one. I would love for her to be able to get a bike to ride outside with her brother and sister.

Thank you for your votes and/or donations 💗💗💗💗💗

Jailynn is a 13 year old girl that has cerebral palsy, autism, epilepsy and several other challenges due to having had of her brain removed at age 2. She is very limited on activities and exercises that she is physically able to due. She is unable to jump or climb. Riding an adaptive bike is something she enjoys and can actually do! She’s previously had an adaptive bike but sadly has outgrown it. We would love to be able to win a new bike and be able to gift her old bike to another child.

FEB
17

I was just thinking about it being February.... 11 years ago.... On February 5, 2009 Jailynn had a hemispherectomy, a surgery to remove the right side of her brain at John Hopkins Hospital. This surgery was to try to stop her intractable seizures. She had a seizure in 2010 when she had a 105 degree fever and then in 2011 seizures plaugued her for months following her chicken pox booster vaccine. She had more testing and we started to schedule a second surgery. I asked for a medication change and her seizures stopped! September of this year will be 9 years seizure free. She has gone through so much and come a long way. It was a very scary decision to make but surgery really changed Jailynn’s life.

FEB
15

Jailynn and her skilled companion dog Notch

FEB
13

Omg this should say she had half of her brain removed. Not had She had a right Hemispherectomy

We are #3 for most votes!

Jailynn and Notch

Comments

Fundraising Progress
$175 raised of $5,950 goal
 

Recent Donations

$25.00
1. Glenda Thompson
$10.00
2. Nanette Nelson
$10.00
3. Cathy Carter
4. Robert Kolm
$20.00
5. Kate Hand
I haven’t met you guys but I wish I could give more. Love the cause and I hope she gets the bike!!
$10.00
6. Candy Rentz