My beautiful Emma Noel is almost 15. She has Emanuel syndrome, plus a million other diagnosis. My daughter has fought to live with a feeding tube her whole life. Her intestines ruptured over 2 years ago!! Her health is very severe. Severe dismobility/or intestinal failure. She just received a central line to go home on TPN. My daughter is not well and on Pallative care. She’s 5 feet and 54 pounds.she’s lost her pool, shower, till she’s better. I want her to feel free and Joyful!she lives in pain 

My beautiful Emma Noel is almost 15. She has Emanuel syndrome, plus a million other diagnosis. My daughter has fought to live with a feeding tube her whole life. Her intestines ruptured over 2 years ago!! Her health is very severe. Severe dismobility/or intestinal failure. She just received a central line to go home on TPN. My daughter is not well and on Pallative care. She’s 5 feet and 54 pounds.she’s lost her pool, shower, till she’s better. I want her to feel free and Joyful!she lives in pain