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Brittany R

Fundraising for Claire W's Freedom Concepts Tandem

Claire loves to feel the breeze in her hair. She also loves to spend time with her older sister. With an adaptive bike, Claire would be able to join us on bike rides throughout national parks on our camping trips and daily adventures around our town. Claire is currently non ambulatory but working on sit to stand. With the extra movement of her legs, I believe this will help build up strength in her leg muscles to enable her to become independent and eventually walk.

Claire is six years old and was born with Trisomy 18. She is non verbal, but very vocal. Claire has been through some dark times, but has shown the type of warrior she can be.

Without the support of family, friends, and the kindness of complete strangers, Claire wouldn't be here today.

Thank you all for your vote, support, and the most valuable: your time.

You can learn more about Claire's journey below!

Claire loves to feel the breeze in her hair. She also loves to spend time with her older sister. With an adaptive bike, Claire would be able to join us on bike rides throughout national parks on our camping trips and daily adventures around our town. Claire is currently non ambulatory but working on sit to stand. With the extra moment of her legs, I believe this will help build up strength in her leg muscles to enable her to become independent and eventually walk.

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Enabling these two to create wonderful memories together is what it's all about. One of Claire's favorite people is her 8 year old sister.

After many other minor surgeries, and hospital stays, we are blessed to enjoy Claire's unrivaled spirit, infectious smile, and her loving disposition!

8xmonths later she had a huge hemangioma removed from the back of her neck. 3xmonths after that, she was diagnosed with stage one hepatoblastoma. A couple months after her 1st birthday, she had the tumor in her liver resected and 3x rounds of chemo.

Claire continued to fight and thrive. Less than 3xmonths old, Claire had a life saving heart surgery to repair congenital heart defects that coincide with Trisomy 18.

Despite being born at 38wks, Claire was only 4lbs and 4oz. She was already given an expiration date by medical professionals who didn't think she would survive birth. Sent to hospice, this was suppose to be one of her only photos.

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Comments

Fundraising Progress
$3,370 raised of $5,400 goal
 

Recent Donations

$50.00
1. Lisa Holden
Love this family! Can’t wait to see Claire on her new bike ❤️
$100.00
2. FB Donation
$100.00
3. 2x FB Donations
4. FB Donations/BF Raffle
Facebook Donation Combined with Raffle Money raised so far. Thank you for all of those who contributed!
$25.00
5. FB Donation
6. Anonymous