Roman will be 2 in April. Roman was diagnosed with trisomy 21 and AVSD heart defect during my pregnancy. After birth we learned he also has pulmonary hypoplasia which is a very rare lung disease and requires a double lung transplant. We have been in and out of the hospital since birth. Now that we are home it's time to catch up on life!

Roman will be 2 in April. Roman was diagnosed with trisomy 21 and a case heart defect during my pregnancy. After birth we learned he also has pulmonary hypoplasia which which is a very rare lung disease and requires a double lung transplant. We have been in and out of the hospital since birth. Now that we are home it's time to catch up on life!