Alice was diagnosed with a Mitochondrial disorder when she was 9 months old and epilepsy at 4 years old. When Alice was 7 months old, she began to lose control of her muscles. She went from being able to jump around on her bouncer to not being able to sit or hold her head on her own. Alice also became feeding tube dependent as she lost the ability to swallow. Alice has been in physical therapy since her diagnosis but it is a slow process and I want her to be able to enjoy other activities that I enjoyed as a kid. Thank you for your help!

Alice was diagnosed with a Mitochondrial disorder when she was 9 months old. When Alice was 7 months old, she began to lose control of her muscles. She went from being able to jump around on her bouncer for quite a while to not being able to sit or hold her head on her own. Alice also became feeding tube dependent as she lost the ability to swallow. Alice has been in physical therapy since her diagnosis but it is a slow process and I want her to be able to enjoy other activities.