Emmett was born with a rare genetic brain malformation called Hemimegalencephally. At 7 mos old he needed to have extreme brain surgery called a hemispherectomy to stop 20+ daily seizures. This surgery, and the seizures had some pretty serious impacts: cerebral palsy, intellectual disability, apraxia, vision loss and autism-like traits. But Emmett a bright and beautiful little human and loves adventure! He’s outgrowing current trike which is non-adaptive and we have to pull by rope. This bike would be an absolute game changer for what we could do as a family! So much freedom to explore could be in our future!! Thank you all so much for your support! Love, the CampbellvonBelchers.
Emmett was born with a rare genetic brain malformation called Hemimegalencephally. It causes catastrophic epilepsy which necessitates a hemispherectomy (complete disconnection of the healthy hemisphere from the malformed half). The surgery, and impact of 40+ seizures per day pre-surgery, cause significant intellectual and physical disabilities including cerebral palsy, vision loss, apraxia and various autism-like traits. But Emmett is sensory seeking and loves adventure!