Miranda our Rare Brave Bear was born with an extremely rare syndrome called Koolen De-Vries Syndrome. It affects every part of her life. She has severe Hypotonia, her lack of muscle tone, balance, & coordination, along with her rare form of epilepsy make it so Miranda is unable to ride a conventional bike. She LOVES riding the adaptive bike in her therapy sessions and this opportunity would give her a chance to enjoy just being a kid and finally be able to ride bikes with her older siblings!  

Miranda our Rare Brave Bear was born with an extremely rare syndrome called Koolen De-Vries Syndrome. It affects every part of her life. She has severe Hypotonia, her lack of muscle tone, balance, & coordination, along with her rare form of epilepsy make it so Miranda is unable to ride a conventional bike. She LOVES riding the adaptive bike in her therapy sessions and this opportunity would give her a chance to enjoy just being a kid and finally be able to ride bikes with her older siblings!